Trevor's Gift of Life Foundation fighting Aplastic Anemia

BMA RESULTS ARE IN!!!

admin — Wed, 06 Jan 2010 00:40:45 +0000

WOW! RESULTS ARE BACK AND THE DOCTORS ARE BEYOND IMPRESSED! HYPOCELLULAR NUMBERS ARE DOUBLE FROM LAST YEARS BONE MARROW ASPIRATION ALONG WITH NUTRAPENIA. WHAT DOES ALL OF THIS MEAN???

WELL- THE DOCTORS COULD NOT BELIEVE HOW WELL THE RESULTS WERE FROM THE BMA OR THE BLOOD DRAW WE HAD YESTERDAY. TREVOR’S PLATELET COUNT IS UP TO 152,000!!! THAT IS IN THE NORMAL RANGE FOR PEOPLE! EVEN HIS WHITE AND RED BLOOD COUNTS ARE IN THE HIGH NORMAL RANGE. WE ARE GOING TO START TO WEAN HIM OFF OF HIS MEDS AFTER COLD AND FLU SEASON AND HOPEFULLY HIS NUMBERS WILL STAY HIGH, IF NOT CONTINUE TO CLIMB!

NEEDLESS TO SAY- WE ARE DEFINATELY DOING THE HAPPY DANCE AROUND THE NORBY HOUSEHOLD.

MAY YOUR 2010 START LIKE A BANG LIKE OURS…..

ALL OUR LOVE AND ANOTHER UPDATE NEXT MONTH!

DAWN AND CREW

GOOD BMA

admin — Wed, 16 Dec 2009 04:08:46 +0000

WELL- WE HAD THE BONE MARROW ASPIRATION PROCEDURE LAST FRIDAY. TREVOR WAS A TROOPER, AND ONLY A BIT SORE COMING OUT OF THE MEDS. ONE TYLENOL AND HE WAS AS GOOD AS NEW. A BIT SORE ON SATURDAY BUT THAT SEEMS TO BE PAR FOR THE COURSE AS HE IS USUALLY SORE THE DAY AFTER. NOTHING TO KEEP HIM DOWN AS HE PLAYED 18 HOLES OF GOLF WITH DAD ON SUNDAY. WE ARE WINDING DOWN THE FINAL DAYS OF SCHOOL FOR 2009 AND ARE DOING OUR BEST TO GET READY FOR THE CHRISTMAS SEASON. WE ARE PLANNING OUR ANNUAL TRIP TO PRESCOTT, AZ FOR NEW YEARS TO SEE NANA AND POPA AND HOPEFULLY LOTS OF SNOW. MAY TRY TO HIT THE GRAND CANYON WHILE WE ARE THERE TOO. WE WON’T BE GETTING RESULTS BACK FOR A FEW WEEKS ON HIS BMA BUT I WILL LET YOU ALL KNOW AS SOON AS WE HEAR SOMETHING.

MAY YOU ALL HAVE A BEAUTIFUL MERRY CHRISTMAS AND A TERRIFICALLY HAPPY NEW YEAR!

ALL OUR LOVE-

DAWN AND CREW

3 YEARS AGO TODAY!

admin — Mon, 07 Dec 2009 04:09:32 +0000

WOW! ALREADY 3 YEARS HAVE PAST. TODAY- 3 YEARS AGO, WE WERE INFORMED OUR SON HAD IDIO-PATHIC APLASTIC ANEMIA. MANY HOSPITAL VISITS, STAYS, BLOOD AND PLATELET TRANSFUSIONS AND TREATMENTS LATER, HERE WE ARE. LOOKING AT TREVOR ONE WOULD NEVER GUESS ALL HE HAS BEEN THROUGH WITH THE TWICE MONTHLY BLOOD DRAWS, HIS COUNTLESS HOURS OF VOLUNTEERING HIS TIME TO EDUCATE PEOPLE ON HIS DISEASE AND THE IMPORTANCE OF DONATING BLOOD AND REGISTERING THEIR BONE MARROW. TED AND I ARE SO PROUD OF HIM AND HOW STRONG HE HAS BECOME THROUGH THIS. HE IS FACING HIS ANNUAL BONE MARROW ASPIRATION THIS WEEK, FRIDAY MORNING, AGAIN THE SCARED CHILD GOES UNDER THE DRILL FOR THIS DISEASE. WE ARE HOPEFUL THAT HIS MARROW IS CONTINUING TO GROW STRONER AND WILL ONE DAY BE WEANED OFF OF ALL THE CYCLOSPORINE MEDICATION. SCHOOL IS GOING GOOD FOR HIM, CHALLENGING BUT HE SEEMS TO ENJOY HIS TEACHERS AND IS MAKING NEW FRIENDS. DREW IS DOING AWESOME IN BASEBALL AS WELL AS SCHOOL AND HAS DECIDED CHORUS IS STILL A BLAST! TED LOVES HIS NEW JOB AT NATIONAL UNIVERSITY AND IS GETTING IN TO THE GROOVE OF THINGS. WE ARE JUST HAPPY TO HAVE HIM AROUND ON SUNDAY’S. THANKSGIVING WAS GREAT AND KEITH AND SYLVIA WERE ABLE TO JOIN US FROM PRESCOTT. WE ARE PLANNING OUR ANNUAL TRIP THERE FOR NEW YEARS AND ARE HOPING FOR SOME SNOW FALL AGAIN. I AM STILL ENJOYING BEING AT SAN ELIJO MIDDLE. MY SECOND YEAR THERE AND IT SEEMS TO BE FLYING BY SO QUICKLY. I WILL UPDATE EVERYONE AS SOON AS WE KNOW HOW THE RESULTS FROM THE BMA. ALL OUR LOVE AND MAY YOU ALL HAVE A BEAUTIFUL CHRISTMAS WITH THE ONES YOU LOVE.

DAWN AND CREW

SUMMER IS WINDING DOWN!

admin — Sat, 29 Aug 2009 14:35:12 +0000

WELL- WHAT AN AWESOME SUMMER WE HAVE HAD. TOO FAST, NEVER SEEMS TO BE ENOUGH TIME OR MONEY TO DO WHAT WE REALLY WANT TO DO BUT DID ENJOY IT! THE BOYS WERE AMAZING! TREVOR, AFTER PLAYING FOR THE BONE MARROW FOUNDATION IN JUNE, HAS DECIDED TO HANG UP HIS GLOVE AND BAT. HE DECIDED TO REPLACE THEM WITH A SET OF GOLF CLUBS FOR A YEAR, (OR SO). WITH HIS NEW FOUND ADMIRATION OF GOLF, ALWAYS THERE, JUST COVERED IT WITH FIELD DIRT FROM BASEBALL, HE HAS BEEN PLAYING EVERY DAY WE LET HIM.

WITH HIS NUMBERS CONTINUING TO CLIMB BI-WEEKLY TO NEW TIME HIGH’S, I AM DIFINATELY IN FAVOR OF GOLF. NO CONTACT, EXERCISE, AND NEW FRIENDS! TOURNAMENTS ARE A NEW THING FOR ME SO i AM LEARNING HOW TO GET INVOLVED WITH THAT ALONG WITH COPING AS BEING THE TEAM MOM FOR DREW’S 10U FLYER’S BASEBALL TEAM.

TED IS ENJOYING IS NEW JOB WITH NATIONAL UNIVERSITY. KEEPING BUSY LEARNING NEW SYSTEMS, INVOLVED IN MEETINGS NOW, STILL GIVING PRIVATES ON SATURDAYS AND COACHING THE FLYER’S FOR DREW.

I AM ALMOST FULLY RECOVERED FROM MY HYSTERACTOMY THAT I HAD ON AUGUST 17TH. FEELING BETTER EACH DAY AND WENT BACK TO WORK THURSDAY.

SCHOOL STARTS MONDAY. TREVOR, NOT HAPPY ABOUT IT, AS USUAL AND DREW IS VERY EXCITED ESPECIALLY SINCE WE FOUND OUT HE HAS VIKI STEWART AS HIS TEACHER. BACK TO A ROUTINE, NOT HALF BAD, BUT AS SOON AS WE GET USED TO IT, NEXT SUMMER WILL BE FAST APPROACHING.

I WILL CONTINUE TO KEEP YOU ALL POSTED. WITH TREVOR’S NUMBERS CLIMBING, 138 THIS PAST DRAW, WE WILL HOPEFULLY CONTINUE TO HAVE ENCOURAGING NEWS.

HAPPY FALL!

ALL OUR LOVE-

DAWN AND CREW

SUMMER NUMBERS UP AGAIN!

admin — Sun, 09 Aug 2009 14:56:07 +0000

TREVOR NEVER CEASES TO AMAZE US! HIS NUMBERS CONTINUE TO RISE AT AN ALL NEW HIGH OF 135K FOR HIS PLATELET COUNT! 150K IS THE AVERAGE LOW NUMBER FOR EVERYONE SO TREVOR IS ONLY 15K AWAY FROM BEING IN THE NORMAL RANGE! WHAT A GREAT WAY TO WIND DOWN OUR SUMMER! HE SEEMS ENERGETIC, EAGER TO START PLAYING BASEBALL WITH THE FLYERS AND HAD A GREAT TIME LAST WEEK FILLING IN FOR A TEAM THAT TRAVELED TO SO. CAL. FOR A WORLD SERIES. TREVOR HELPED THEIR TEAM BY FILLING IN FOR THEM AS THEY NEEDED PLAYERS. THE TEAM DID HORRIBLY BY NOT WINNING A SINGLE GAME THE ENTIRE WEEK BUT HE DID WELL AND HAD A GOOD TIME. WE WERE ABLE TO SPEND A DAY WITH THE GOODALE’S AT THE BEACH WHILE THEY WERE IN TOWN AND THAT WAS ENJOYABLE TOO. DILLON HAD HIS FOOT SURGERY ON THE 3RD. IT WENT MUCH BETTER THAN THE DOCTORS WERE PREDICTING AND NO SKIN GRAFT WAS NEEDED. WHAT A RELIEF! HE IS MAKING MORE PROGRESS EACH DAY AND IS HOBBLING ALONG ON HIS CRUTCHES VERY WELL. KEITH IS HAVING HIS BIRTHDAY THURSDAY AND WE WERE HOPING TO BE ABLE TO SPEND IT WITH THEM IN PRESCOTT BUT I AM NOT UP TO THE DRIVE BY MYSELF WITH MY BACK HURTING. TED IS ENJOYING HIS NEW JOB AT THE NATIONAL UNIVERSITY GOLF ACADEMY AND IS FINDING IT CHALLENGING. DREW HAS BEEN PLAYING WITH HIS FLYERS TEAM IN SOME LOCAL TOURNAMENTS AND HAVING A BLAST. WE CONTINUE HIS TRAVELING WITH ONE MORE TOURNEY TO CHINO HILLS NEXT WEEKEND. THE BOYS GO BACK TO SCHOOL, (AND I GO BACK TO WORK) ON THE 31ST OF AUGUST. I AM LOOKING FORWARD TO THIS MORE THAN THE BOYS BUT ONCE WE GET IN TO A ROUTINE, I AM SURE WE WILL ALL BE HAPPY. WELL- I AM OFF TO ENJOY A FAMILY DAY TODAY WITH TED BEING OFF EVERY SUNDAY, WE HAVE A GOOD TIME DOING THINGS WE NEVER WERE ABLE TO DO BEFORE. HAVE A GREAT REMAINING SUMMER AND MAKE SURE YOU WEAR YOUR SUNBLOCK! DAWN AND CREW!

NUMBERS ARE UP!

admin — Thu, 02 Jul 2009 04:24:43 +0000

WELL- THE DOCTOR WANTED A BLOOD DRAW THIS WEEK TO SEE IF TREVOR WAS GOING TO BE OKAY OR WHAT OUR NEXT COURSE OF ACTION WOULD BE. WELL- HIS NUMBERS ARE EXCEPTIONAL! HIS PLATELET COUNT IS AT AN ALL TIME HIGH OF 126K AND HIS A.N.C. WENT FROM 750 TO 1750! NEEDLESS TO SAY-WE ARE THRILLED!

TREVOR IS SURE IT IS FROM THE GOLF HE PLAYED ON MONDAY. THE BONE MARROW IRONMAN GOLF FUNDRAISER WAS MONDAY AND TREVOR COMPLETED 140 HOLES OF GOLF IN ONE DAY! WOW! I ONLY CADDIED FOR HIM AND I WAS EXHAUSTED! DENNIS AND TED COMPLETED 144 HOLES AND DILLON FINISHED 117 BEFORE ALI CALLED IT QUITS FOR HIM DUE TO ALL-STARS PRACTICE THE NEXT DAY. I AM SO PROUD OF ALL THE GUYS AND WHAT THEY COMPLETED! TREVOR HAS DECIDED HIS GOAL FOR NEXT YEAR IS 150 HOLES! SEEMS IMPOSSIBLE BUT HE WOULD HAVE KEPT PLAYING IF HE HAD GLOW IN THE DARK BALLS. THE ONLY REASON HE QUIT IS BECAUSE I MADE HIM STOP WHEN IT WAS SO DARK, WE COULDN’T SEE THE BALL ANY MORE.

OTHER NEWS- THE BOYS TOOK THEIR REPORT CARDS TO HANSON’S SURF SHOP TODAY. THEY PAY KIDS FOR GOOD GRADES. WELL- THE BOYS BOUGHT THEMSELVES THEIR FIRST SURF BOARDS. WE WILL BE GOING TO THE BEACH FRIDAY FOR OUR FIRST OFFICIAL SUMMER/BEACH/SURF DAY OF THE SUMMER. OUR NEIGHBOR, MR. ANDREW CAME OVER TONIGHT AND EXPLAINED TO DREW HOW TO PREPARE HIS SURF BOARD FOR THE BEACH. HE IS SO EXCITED- I HOPE HE SLEEPS BETWEEN NOW AND THEN.

HAVE A GREAT SUMMER AND BE SURE TO CALL US AND WE’LL JOIN YOU AT THE BEACH!!!

DAWN AND CREW

HAPPY SUMMER EVERYONE!!!

admin — Sat, 27 Jun 2009 02:51:18 +0000

WELL- SUMMER IS OFFICIALLY HERE FOR US AND WE HAVE YET TO GET SOME SUN IN THE AM. TYPICAL JUNE GLOOM UNTIL LUNCH TIME.

WE HAVE BEEN VERY BUSY WITH ALL-STARS FOR TREVOR, THEY JUST GOT KNOCKED OUT WEDNESDAY NIGHT.

WE DID A BLOOD DRAW WEDNESDAY AND TREVOR’S ANC WENT FROM 3K DOWN TO 751. THE NEW DOCTOR, DR. GETTES, SEEMS CONCERNED BUT NOTHING SO MAJOR THAT WE NEED TO LIMIT HIS ACTIVITY OR INTERACTION WITH OTHERS. HIS PLATELET COUNT ALSO DROPPED TO 86K BUT TED, TREVOR AND I FEEL HIS NUMBERS DROPPED DUE TO HIM HAVING A SUMMER COLD. WE WILL BE GOING BACK FOR ANOTHER BLOOD DRAW NEXT WEDNESDAY AND WE ARE CAUTIOUSLY OPTOMISTIC THAT THEY WILL RISE EVER SO SLIGHTLY.

WE ARE PLANNING A FEW SHORT TRIPS THIS SUMMER AND WE ARE ALSO CHECKING OUR CHEDULE TO SEE IF WE CAN GET TO ARIZONA AND POSSIBLY THE GRAND CANYON TOO.

WE WANT TO SEND OUT A HUGE HAPPY BIRTHDAY WISH TO NANA,(SYLVIA) TOMORROW. WE HOPE YOU HAVE A FANTASTIC BIRTHDAY.

WE WOULD ALSO LIKE TO PUT IN A PRAYER REQUEST FOR GRANDMA ANNIE, LINDA’S MOM. SHE WAS DIAGNOSED WITH BREAST CANCER THIS WEEK AND WE ARE STILL WAITING TO SEE HOW THE TREATMENT IS GOING TO BE APPROACHED. PLEASE KEEP HER IN YOUR PRAYERS.

TREVOR AND TED ARE PARTICIPATING IN THE BONE MARROW FOUNDATION GOLF TOURNEY FUNDRAISER MONDAY FROM SUN-UP TO SUN-DOWN. TED IS PLANNING ON COMPLETING 200 HOLES AND TREVOR 100. SEND GOOD THOUGHTS THEIR WAY!

I WILL UPDATE NEXT WEEK AFTER OUR NEXT BLOOD DRAW.

DAWN AND CREW

May update

admin — Wed, 13 May 2009 22:27:38 +0000

WELL, IT HAS BEEN QUITE A WHILE SINCE MY LAST UPDATE. I APOLOGIZE. TREVOR FOUGHT A CASE OF THE STOMACH FLU, WE HAD FUN TELLING PEOPLE WE WEREN’T SURE IF IT WAS THE SWINE FLU OR NOT, WE DIDN’T WANT TO GET HIM TESTED. HE IS FINE AND SO IS EVERYONE ELSE. I HAVE A CASE OF SINUSITUS I AM FIGHTING RIGHT NOW BUT TED AND DREW SEEM TO HAVE SKIRTED THROUGH UNSCATHED. WE HAVE NOW HIT A NEW MARK… BLOOD DRAWS ARE NOW EVERY MONTH INSTEAD OF EVERY OTHER WEEK. YEAH! WE ALSO HAVE A BIT OF EXCITING NEWS!

TED IS STARTING A NEW POSITION. AFTER 18 YEARS AT THE AVIARA GOLF ACADEMY, HE WILL BE CHANGING GEARS AND BECOME THE DIRECTOR OF GOLF FOR NATIONAL UNIVERSITY IN JUNE. THIS IS AN EXCEPTIONAL OPPORTUNITY FOR HIM AND HE IS AS NERVOUS AS HE IS EXCITED. IT WAS A VERY DIFFICULT DECISION, BEING WITH KIP FOR SO LONG, THEY ARE LIKE AN EXTENDED FAMILY. WE COULD NEVER THANK THEM ENOUGH FOR ALL THEY HAVE DONE FOR US AND OUR FAMILY THROUGH THE YEARS. WE HOPE TO STAY IN CLOSE CONTACT AND KEEP THE FRIENDSHIPS GOING. PLEASE DROP TED A LINE OF ENCOURAGEMENT IF YOU GET A CHANCE. HE WOULD LOVE TO HEAR FROM YOU. HIS DIRECT E-MAIL IS: TNORBYGOLF@AOL.COM

WITH TREVOR’S BLOOD NUMBERS HOLDING, WE ARE HOPING FOR A LOW KEY SUMMER, STAYING CLOSE TO HOME AND GETTING READY TO TURN OUR BACK YARD INTO A FRUIT FARM. THE BOYS WANT TO GROW OUR OWN FRUIT, VEGGIES AND HERBS SO IT LOOKS LIKE WE WILL BE BUSY CLEARING OFF THE BACK HILL FOR SOME FOOD PLANTS. WISH US LUCK!

HAVE A FANTASTIC SUMMER AND I WILL CONTINUE TO UPDATS AS MUCH AS POSSIBLE. FEEL FREE TO DROP US A LINE. WITH US STAYING HOME, WE WOULD LOVE TO HAVE THE COMPANY COME BY FOR A FEW DAYS AND RELAX WITH US. HELP US EAT A HOMEMADE PEACH PIE IN A FEW WEEKS AS OUR TREE HAS A FEW HUNDRED PEACHES GETTING READY TO BE PICKED.

DAWN AND CREW

BLOOD NUMBERS AGAIN

admin — Thu, 26 Mar 2009 02:37:49 +0000

WELL-WE HAVE HAD 2 BLOOD DRAWS SINCE MY LAST ENTRY. TREVOR’S NUMBERS WENT UP 10% THE FIRST DRAW AND STAYED PRETTY MUCH EVEN AT YESTERDAYS DRAW. HIS TOTAL NUMBERS ARE DOING BETTER AND HIS PLATELET COUNT IS UP TO 108K. HE WASN’T FEELING WELL YESTERDAY AND WAS FIGHTING A BAD HEADACHE SO WE WERE WORRIED HIS 3′S MIGHT BE DOWN A BIT BUT THEY STAYED HIGH AND CONSISTANT. THE HOSPITAL HAS CALLED TWICE TRYING TO REACH US AND WE ARE PLAYING PHONE TAG WITH THEM. TREVOR SEEMS GOOD, ENERGY LEVELS ARE UP AND NO RESTRICTIONS AT THIS TIME. DREW IS BUSY PLAYING BOTH REC BALL AND FLYERS 9U TRAVEL BALL. TED IS BUSY COACHING THE LIL FLYERS, PLAYING ON AVIARA SOFTBALL TEAM, WORKING AND BEING DAD. BETWEEN THE 4 REC BASEBALL GAMES AND PRACTICES, ALONG WITH THE TRAVEL BALL GAMES EACH WEEK, IT DOESN’T LEAVE MUCH FREE TIME TO DO MUCH ELSE BUT ALL WHO KNOW US, KNOW WE WOULDN’T WANT IT ANY OTHER WAY! I AM STILL ENJOYING WORK, TED’S LESSON’S ARE PICKING UP SLOWLY AND WE ARE ABSOLUTELY LOVING THE SPRING WEATHER HERE. THE ROSES ARE IN FULL BLOOM AND THE BIRDS ARE A CHIRPING ALL DAY LONG! WELL- OFF TO GET THE BOYS READY FOR BED AND HELP TED OUT WITH SOME MORE FLYERS PAPERWORK. ALL OUR LOVE- DAWN AND CREW

NUMBERS DIP DOWN

admin — Wed, 25 Feb 2009 03:30:11 +0000

WELL- THE PAST 3 BLOOD DRAWS CONTINUE TO SHOW TREVOR’S PLATELET COUINT DROPPING SLIGHTLY. TODAY WE ARE AT 100K FROM A HIGH OF 117K. THE REST OF TREVOR’S NUMBERS CONTINUE TO STAY IN THE NORMAL RANGE, IT IS ONLY THE PLATELET COUNT WE ARE HAVING DIFFICULTY WITH. HIS MEDS HAVE BEEN LOWERED TO 100MG 2 TIMES A DAY. TREVOR HAS CONTINUED ON HIS QUEST TO RAISE AWARENESS FOR THE BLOOD BANK AND BONE MARROW FOUNDATION OF SAN DIEGO. HE DID A RADIO SPOT FOR A LOCAL STATION KYXY FM AND A PHOTO SHOOT FOR THE BLOOD BANK AND ‘PERFECT MATCH’. HE IS IN THE THROWS OF TRYING TO RAISE MONEY FOR THE BONE MARROW FOUNDATION GOLF TOURNAMENT THIS JUNE IN WHICH HE IS TRYING TO RAISE MORE MONEY THAN HIS COUSIN DILLON. HE IS COLLECTING RECYCLABLES AND DOING CHORES AROUND THE HOUSE. DREW IS DEEP IN HIS ORTHODONTICS AND WILL BE GETTING HIS BRACES PUT ON NEXT WEEK. AS OF NOW, HE IS STILL EXCITED ABOUT IT. I AM ENJOYING MY JOB AT THE MIDDLE SCHOOL EVEN THOUGH THE HOURS ARE SHORT BUT EVERY LITTLE BIT HELPS. TED IS SLOW AT AVIARA BUT HOPEFULLY THINGS WILL START TO PICK UP HERE IN THE NEAR FUTURE WITH SPRING RIGHT AROUND THE CORNER. I AM EXPECTING A CALL FROM THE HOSPITAL TOMORROW WITH WHAT THEY WANT US TO DO WITH TREVOR’S MEDICATION LEVELS AND IF WE WILL INCREASE OR KEEP THE SAME. AT THIS POINT, TED AND I CAN’T SEE WHY THEY WOULD WANT TO LOWER IT WITH HIS PLATELET COUNT FROPPING EACH WEEK, BUT WE AREN’T THE DOCTORS, SO YOUR GUESS IS A S GOOD AS OURS.

TAKE CARE AND I WILL UP DATE SOON-

ALL OUR LOVE-

DAWN AND CREW